Wednesday, June 27, 2012

Getting sooooo close to going HOME!

Bailey just sent me this text and it is soooo exciting!

She is on regular nasal oxygen through the wall oxygen (NO MACHINE) and it is at .5 liters, which is barely any! The nurse is slowly weaning it through out the day to see how much Mylah can tolerate! They also may put the feeding tube through her nose today and out of her mouth so she will be able to get a better suction while eating.  The feeding she is getting now is called bolus feeding which means she gets it all in like 15 minutes instead of slowly over an hour, and then they wait 2 hours and 45 min to give her any more. This is teaching her to eat and get hungry! She weighs 5 pounds 9.5 ounces and her bed temperature is down to 27.5, meaning she is almost able to be in an open bed!
We totally give God all the honor and glory and praise for all He has brought her through.
Keep praying warriors, we are almost ready to take her home, but even that will be a transition we will need your prayers on.


The last two pics were yesterday, I opened the "port hole" on her bed and started talking to her and she was smiling and trying to make noise!!!!!
Love this little girl!!

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